My Privacy My Choice: Handling health information for research and management

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Privacy and Healthcare Data

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In order for the information society to realise its full potential, personal data has to be disclosed, used and often shared. This book explores the disclosure

Beyond the HIPAA Privacy Rule

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In the realm of health care, privacy protections are needed to preserve patients' dignity and prevent possible harms. Ten years ago, to address these concerns a

Privacy, Confidentiality, and Health Research

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The potential of the e-health revolution, increased data sharing, database linking, biobanks and new techniques such as geolocation and genomics to advance huma

Registries for Evaluating Patient Outcomes

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This User’s Guide is intended to support the design, implementation, analysis, interpretation, and quality evaluation of registries created to increase unders